On this page you can find information about forthcoming events that you may be interested in.
ASK THE EXPERTS: LIVING KIDNEY DONATION
Saturday 14 November, 2020 10am
Online via Zoom. Register here
After successfully trialling our recent AGM online, we’re now pleased to announce our next free online event – Ask the Experts: Living Donation, which will also take place on Zoom.
This is an opportunity for anyone considering living kidney donation or those going through the process, whether donating to someone you know, or anonymously to the waiting list, to have your questions answered by our team of experts. If you might need a transplant and are considering living donation, the panel will also be able to answer any questions you may have (although, for obvious reasons, will not be able to give specific clinical advice for individual cases).
We know that the process of thinking about donation can be very daunting, and many people have lots of questions and concerns before and during the process. We hope this event will be an opportunity to ask them in an informal and friendly setting. You won’t appear on screen and you can choose to remain anonymous should you wish to. There’s no pressure to ask, if you just want to come along to hear the answers to other people’s questions.
We will be joined by Paul Gibbs, consultant transplant surgeon, Queen Alexandra Hospital, Portsmouth, Dr Adnan Sharif, consultant transplant nephrologist (kidney specialist) at the Queen Elizabeth Hospital Birmingham and Lisa Burnapp, clinical lead for living donation, NHS Blood and Transplant. There will also be someone who has donated a kidney recently, who will be able to share their personal experience of donation. We are very grateful to all of them for their valuable time and expertise.
The event is free but we gratefully welcome donations to support the charity in helping achieve its mission ‘no waiting for a transplant for want of a kidney’.
To make a donation please follow this link .
If you would like to submit any questions to the panel in advance of the event, please email email@example.com
NON-DIRECTED LIVING KIDNEY DONATION – WHAT THE RESEARCH TELLS US
Saturday 28 November, 10am – 11am
Online via Zoom. Register here.
This event will report on two recent studies into non-directed living kidney donation.
An Update on BOUnD – what we know to date about the Barriers and Outcomes of Unspecified (non-directed, altruistic) kidney donation
Presented by Hannah Maple
This talk will provide an overview of the BOUnD study – a national multicentre study being run from Guy’s Hospital in London, which aims to investigate the barriers and outcomes of altruistic kidney donation. The study format and results to date will be outlined and discussed.
Hannah is a transplant and general surgeon in the final year of her training at Guy’s Hospital, London. She is also a clinical lecturer with research interests in health psychology as applied to healthcare and transplantation. Along with Professor Nizam Mamode she is one of the main investigators working on the BOUnD study – a study which looks to understand the barriers and outcomes following unspecified (non-directed, altruistic) kidney donation. She is vice-chair and chair elect of ELPAT – the section of ESOT (European Society of Organ Transplantation) dedicated to the ethics, legal and psychological aspects of Transplantation.
Research Update: Mental Health of Unspecified Anonymous (non-directed) Living Kidney Donors after Donation
Presented by Emma Massey
Emma is a health psychologist working as Associate Professor at the department of Internal Medicine, section Nephrology & Transplantation at the Erasmus MC, Rotterdam, the Netherlands. She is involved in research, care and education. Her research interests include self-management and medication adherence, health literacy, mental health of patients and donors, and tailored education on treatment options. Specific groups of interest include adolescents, young adults and unspecified (anonymous) living donors. In this presentation she will talk about the results of a Dutch study to assess the mental health of anonymous (non-directed) living kidney donors after donation.