Privacy policy statement

Give a Kidney CIO is a registered charity and is the data controller of the information we collect from or about you (personal data). As data controller, we are responsible for the security and processing of all personal data.

In this Privacy Notice we have tried to explain in a clear, open and honest way how we collect, use and share your information safely and not do anything you wouldn’t reasonably expect. We aim to give you greater choice and control where appropriate over how your personal data is used.

This policy does not apply to third-party applications, websites, services, or platforms that may be accessed through links that we may provide to you. Any personal data that you provide to these websites will be governed by the third-party’s own privacy policy. Similarly, your information may be shared with us by independent parties, such as JustGiving. They will only do so when you have indicated that you wish to support Give a Kidney and with your consent.  You should check their Privacy Policy when you provide your information to understand fully how they will process your data. 

Where we collect your personal information from

We collect personal information about you in several ways:

  • Via our website
  • When you contact us by email or by post
  • When you book a place on an event hosted by Give a Kidney
  • When you opt in to subscribe to our newsletter.
  • When you contact us to receive information 
  • When you share a personal story with us*

*this data is also shared with the Robert Dangoor Living Donor Programme team if you complete our joint consent form.

What personal information do we collect
We only ask you to supply information that we need in order to provide the service you have requested. We will normally ask you to provide us with:

  • your name
  • your email address

For certain communications:

  • we may ask you to supply your mailing address
  • the reason you have chosen to support our charity
  • whether you are a living donor


Our website uses Cookies. Cookies are small data files that are sent between computers during a browsing session. Cookies are typically stored on your device and are used by websites to stimulate a continuous connection to that site. To make our site more responsive to your needs we use cookies to track and manage information relative to your specific interests. In this way, we can tailor our site to your needs, deliver a better and more personalised service and track the pages on our site that you visit.

The use of cookies automatically identifies your browser to our computers whenever you interact with our site. Your browser options allow you to disable cookies. You should note that if you do disable cookies, you may not be able to access all the services on this site.

IP Addresses

We may collect information about your computer, including where available your IP address, operating system and browser type for system administration. This is statistical data about our users’ browsing actions and patterns and does not identify any individual.

How we use your information

We may use the information we hold about you in the following ways:

  • To invite you to events.
  • To provide you with the services you have requested, such as event registration information, or to send you materials you have requested.
  • To share opportunities for you to gain more information or to hear about new research e.g. inviting you to one of our hosted webinars.

To improve our understanding of how our website is used so that we can provide a better service to our members and any non-members who visit us.

  • To maximise your fundraising for us e.g. asking you to complete a Gift Aid form.

We only use your personal information for marketing where you have opted in by giving consent or you have provided permission to other organisations to allow us to market to you, for example, via Facebook. Please note that any information that you provide through the use of this functionality is governed by the applicable third party’s privacy policy and not by this privacy policy

How you can change, delete or ask to your information

We understand circumstances may change.

You can easily withdraw the permissions you have given us, at any time either by contacting emailing us or writing to us, or clicking on the unsubscribe link you will find in our marketing emails (sent via Mailchimp).

The right of access allows you to ask for full details of the personal information that we have on record about you. If you would like to make such a request, please let us know. It is our duty to respond to such a request within one month.

If you would like us to completely delete all the information we have on record about you, please contact us. For any changes you would like to make about what data we hold or for any other requests regarding your information please contact:

If your personal details change, please help us to keep your information up to date by contacting us at Give a Kidney, Brendarth, Lune Valley Estate, Lancaster LA1 3PG or by email info@giveakidney,org  

How we keep your personal information safe

Keeping your personal details is very important to us. We work hard to ensure data is encrypted when in transit and storage, and access to this data will be strictly limited to a minimum number of individuals and subject to confidentiality commitments.

We will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with our Data Protection Policy. Unfortunately, the transmission of information via the internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to any of our websites; any transmission is at your own risk. Once we receive your transmission, we make our best efforts to ensure its security on our systems. 

We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purpose for which it is used.  

We NEVER share, swap or sell your details with any company, charity or other third party for marketing or fundraising for their purposes. 

We may disclose your personally identifiable information to people within the charity, who will be bound by duties of confidentiality. We will never disclose your personally identifiable information to other third parties without your express written permission. 

Changes to this privacy notice

This Privacy Notice was drafted with brevity and clarity in mind. It does not provide exhaustive detail of all aspects of BH Live’s collection and use of personal information. However, we are happy to provide any additional information or explanation needed using the contact details in this policy.

We keep our privacy notice under regular review.

This privacy notice was last updated on: April 2024